Rare and Complex Conditions

My Journey with an “S” Curve and Adolescent Idiopathic Scoliosis – Health Article

I first learned I had scoliosis when I was in the sixth grade. My mom was rubbing my back and she thought it felt weird. Therefore, we went to the doctor and she used a measuring tool to determine that I might have a curve in my spine. That appointment marked the beginning of my journey with adolescent idiopathic scoliosis.   Diagnosed with an “S” curve We made our way to the Crawford Spine Center at Cincinnati Children’s. Dr. Mehlman…

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A Letter To My Sister, My Daughter’s Kidney Donor – Health Article

Dear Micheala, I have memories of us as little girls playing outside together, digging up dirt, jumping off the rope swing in the back yard and fighting over who was mom’s favorite. I never would have thought that one day you would be my daughter’s kidney donor and save her life. A million reasons popped in my head for why you shouldn’t go through with the testing. I couldn’t imagine my little sister doing this. I knew it would be…

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A Ride For HLH Research – Health Article

I recently returned from a week-long test of my physical abilities and mental fortitude – an entirely voluntary, week-long bike ride through the mountains along the Blue Ridge Parkway to raise money for hemophagocytic lymphohistiocytosis (HLH) research. Dr. Ashish Kumar, MD, PhD stops along the Blue Ridge Parkway during part of his 500 mile ride. This particular bike ride has taken many forms since Justin Akin rode from Amarillo Texas to Chicago Illinois in 2011. He made that first ride…

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